Louise’s mother never gave up hope that a cure would be found.

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March 25, 2016 by dontbringlulubook



WP_20160325_12_50_35_ProDoris – ‘Lulu’ co-author even went to the length of asking if Louise could have her thyroid transplanted.

She’d read an article in The New York Times in 1968 and followed this up with a letter to a specialist in paediactric medicine at the University of Miami.

Sadly, the professor’s conclusion was clear in his reply where he explained that he didn’t know of any work being done on the transplant of the thyroid. He wrote that it was necessary for the baby in the uterus to get normal amounts of thyroid hormone for brain development.He couldn’t see that a transplanted thyroid would have any advantage over a child getting thyroid hormone as a substitute for what, in Lulu’s case, she didn’t have – she was born on March the 25th in 1962 (Lady Day) without a thyroid gland.

From ‘Don’t Bring Lulu; Her Family’s Tale of Trial and Triumph,

‘So the test proceeded, and we relaxed a little when the doctor administered the dose with a humble teaspoon. Somehow this made it seem much more homely. The Geiger counter moved back and forth across Lulu’s neck. There was no reaction.  Nothing.

It wasn’t that she had a sluggish thyroid. What the Geiger counter revealed was that there was nothing there to be sluggish. As another doctor explained later, ‘Her thyroid is just not functioning. There’s nothing but the husk.’

Credits for picture – courtesy of the Onions’ family.




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